We will soon start the third round on Patient Reported Outcome (PRO) measures for use with children who have a Brachial Plexus Birth Injury (BPBI).
We were pleased to have analysed results from 36 centers that completed the first round on PRO measures, and 26 in the second round on PRO measures.
A number of conclusions have been reached, but we need to further narrow down your preferred PRO.
In the current round you will only have the choice between the two options that had the most votes in the previous round. This round only has 4 questions, and one general comment field. We hope for a speedy response.
Below you can download:
We’ll start to send out invitations for the sixth round of iPluto soon.
This is the second round on Patient Reported Outcome (PRO) measures.
You can download a PDF << here>> , which contains all questions, as well as answers to the previous round. We – the moderator team – strongly advise to print this PDF to facilitate discussion within your team, before entering the scores online. (please note it is a 67 page document designed to print double-sided)
We’ll start to send out invitations for the fifth round of iPluto soon.
This round will cover Patient Reported Outcome (PRO) measures. Please note that this round is a lengthy survey which evaluates 23 different PRO measures.
You can download a PDF here, which contains all questions, as well as sample pages from the PRO measures. We – the moderator team – strongly advise to print this PDF to facilitate discussion within your team, before entering the scores online. (please note it is a 100 page document designed to print double-sided)
An invitation e-mail was sent today to recruit participants for the fourth iPluto round of surveys. The goal for this 4th round is to aim for consensus on which PROMs are suitable to evaluate function and daily life extremity use for children with Birth Brachial Plexus Injury.
With great pleasure we announce that the first iPluto paper has been published.
In fact, it is OpenAccess, and available here
We thank all the participants who have joined this effort !!
Let’s continue, there is similar work to be done for additional ICF domains and PROMs.
Yesterday, the results of the Third Round were presented at the Lorna Ramos Course in Vancouver. Please feel free to download the presentation.
A preliminary score-form will be published online soon, listing the items for which consensus was reached.
At the recent annual meeting of the ASPN the interim results after two rounds were presented as ePoster. You can download it here: aspn-2017-eposter-ipluto
Because the Third Round is still in progress, we remain curious on this round’s important results. We noticed that it takes more reminders to encourage respondents, so we leave the questionnaire available a little longer…
Thanks to all participants to the previous round. We received over 70 responses worldwide ! You are probably curious to know the results. Well, they will be provided during the third round…
The next round for iPluto will start soon ! We’ll send an invitation email with your personal link within the next few days.
For your convenience, the questions are available for download here: questions-ipluto3
The second round of iPluto has started.
We encourage you to participate soon, as the timeframe between rounds will be limited. The survey needs to be answered online, using the link in your invitation email.
The questions in Round 2 can be downloaded for consultation within your group / center: questions-round2.
Thanks to all contributors !
We’ve had a good world-wide response to the first round of surveys, and results are being analyzed now to prepare the second round.